Medicines that people with hemophilia should not take include the following:. Because a bleeding episode often begins with an injury, it is important to help prevent falls in the home.
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To learn more about Healthwise, visit Healthwise. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. Top of the page. Topic Overview How can I care for myself? Recognize bleeding symptoms. Be active, but exercise with care. Don't take non-prescription medicines unless your doctor tells you to.
Prevent injuries and accidents around your home. Recognize bleeding symptoms Many people who have hemophilia know when they are bleeding even before there are many symptoms. Bleeding in a joint Bleeding into a joint hemarthrosis , often without an injury, is the most common bleeding problem in people who have severe hemophilia. Symptoms of bleeding into a joint include: Warmth or tingling in the joint during the early stages of hemarthrosis.
This is called an aura. If bleeding is not treated, mild discomfort can progress to severe pain. Swelling and inflammation in the joint, caused by repeated episodes of bleeding. If episodes continue, the swelling may lead to chronic pain and destruction of the joint. An infant or child not wanting to move an arm or leg because of bleeding into an affected joint.
This is often first noticed when a child begins to walk. Bleeding in a muscle Another common symptom of hemophilia is bleeding into a muscle hematoma , which can be mild or severe. There are many possible symptoms of bleeding into muscle, including: Bruising. Muscle hardening. Pain, especially when large muscle groups are affected. Be active, but careful People who have hemophilia can help prevent bleeding episodes by choosing appropriate exercises that keep their muscles and joints in good shape.
Sports and activities that are typically recommended for adults and children who have hemophilia include: Swimming. Bicycling be sure to wear a helmet.
Sports that are possible but carry an increased risk of bleeding include: Baseball. These tips can help:. Also, tell your child's school staff, friends, and all caregivers that your child has hemophilia. They should know:. Hemophilia treatment has come a long way. Most people lead full, healthy lives with careful management of their condition.
You can find information and support through your child's care team and online at:. Doctors and scientists continue to work on other treatments, such as better and convenient ways to give replacement factor and gene therapy. Reviewed by: Cynthia A. Gauger, MD. Larger text size Large text size Regular text size. What Is Hemophilia? Different treatments can help control bleeding in most people with hemophilia. Symptoms of hemophilia vary, depending on how much clotting factor a person has and where the bleeding is: Bleeding in a joint can cause a "bubbly" feeling in the joint, followed by swelling, tenderness, stiffness, and trouble using the joint.
Bleeding in a muscle can cause pain, swelling, warmth, and a bruise over the area. Babies and toddlers who have bleeding in a muscle or joint might be fussy or refuse to crawl or walk. Bleeding in the digestive system can cause black or bloody poop or blood in throw-up vomit.
Bleeding in the brain can cause a headache , vomiting, sleepiness, or seizures. What Causes Hemophilia? What Are the Types of Hemophilia? Who Gets Hemophilia? How Is Hemophilia Diagnosed? To diagnose hemophilia, doctors order blood tests, including: complete blood count CBC prothrombin time PT activated partial thromboplastin time PTT factor VIII activity test factor IX activity test If hemophilia runs in the family, doctors can do prenatal before birth testing with amniocentesis or chorionic villus sampling.
How Is Hemophilia Treated? Factor replacement can be done: at a hospital or hemophilia treatment center at home by a nurse at home by the person with hemophilia or someone else, after being trained Doctors also can give medicines to help control bleeding during procedures such as dental cleanings and surgeries.
How Can Parents Help? Your child will receive the factor in the clinic, the hospital or as part of a home treatment program. Where the treatment is done depends on the extent of the bleeding and its location. For some children the nurse coordinator can arrange a home treatment program. Remember that a person with a bleeding disorder will not bleed faster than anyone else. However, the bleeding will last longer if not treated. If your child has any of the following symptoms, he should see a doctor right away.
These could be signs of bleeding inside the head:. A child who gives himself factor at home should immediately give himself one dose of factor after a head injury. Then he should see the doctor. If your child has any of these complaints, he may have bleeding into a joint and will need clotting factor. Call the doctor right away. If your child has bleeding from the lips, gums or tongue, apply pressure and ice packs.
If the bleeding does not stop, call the hemophilia team. Do not let him eat or suck a pacifier. Continue to hold ice packs over the cut until your child has been treated or until bleeding has stopped. Ask for the hematologist on call. The doctor will return your call and tell you what to do. If you are unable to reach the hematologist on call, take your child to the closest emergency room right away.
The longer you wait, the more severe the bleeding can become. Delay can increase the amount of damage and the length of treatment. Hemophilia PDF. Skip to Content. Urgent Care. In This Section. Conditions We Treat Hemophilia. Why People with Hemophilia Bleed Some people think a person with hemophilia can bleed to death from a small cut. Treatment The key to best outcomes is to prevent and treat bleeding. Ways to Help Prevent Bleeding Here are some things you can do to help prevent bleeding: Be sure to tell the doctor, dentist or nurse your child has hemophilia.
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